Posts Tagged With: Neutropenia

>A whole new world….

>Ruben fell ill again this weekend… So we had to check him into the Royal Berkshire hospital for the first time. And I must say we are impressed. The admission process saw us with a doctor within 20 minutes of steeping onto the ward. The nurses seemed to know all about the Neutropenia and were … Continue reading »

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>Ruben: Great News!

>Hey Hey all! We had some great news about Ruben today! His Neutrophil count came back at a High 1.58. This is an almost normal level (normal being 1.7). In actual fact, Neutropenia is defined as being a Neutrophil count of below 1.5. Compared to recent constant readings of around 0.02 for the past few … Continue reading »

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>Ruben: Meningitis Scare over

>Good news everybody! Ruben doesn’t have meningitis!!! It seems that some Meningococcal Bacterium managed to infect the blood sample after it left Ru’s body, probably due to poor hand hygiene (hopefully in the lab). However, he was promptly given the anti-biotic for the Meningitis as it took 2 days to confirm the results. The repeated … Continue reading »

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>Ruben: Meningitis Scare.

>Well, it all started as a routine trip into the hospital when Ruben’s temperature reached 39.6 celcius (thats very high btw). As usual, the doctors did blood tests and had a good look at Ru. They sent us home the next day with some oral anti-biotics, as it appeared to be a viral infection. On … Continue reading »

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>Ruben: Operation Port-A-Cath

>Rubens Operation ran very smoothly on Tuesday afternoon. He had a Port-a-Cath fitted, which is now a raised bump (about 150mm radius) underneath his skin about 200-300mm below his right nipple. He also had a bone-marrow biopsy taken, the results of which we should have in a few weeks. The Tube which lies underneath Rubens … Continue reading »

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>Ruben: Not good news.

>It’s been a while since I’ve posted anything. I just wanted to put on an update about Ruben. Sadly, Ruben’s neutropenia hasn’t cleared up by it’s self. The graph below shows no trend of improvement regarding Rubens neutraphils. The condition is considered as severe if the count is below 0.75. Only on one occasion has … Continue reading »

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>Ruben: There and back again…

>We got Ruben home on Thursday night (about 11pm) It had been a tiring week for us all. Jo had been ill with a bad chest infection, I was at the hospital going out of my mind in that tiny room for at least 20 hours everyday and suffering from chest pain myself. My Mum … Continue reading »

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>Ruben: Back in Hospital Again.

>Well… Ru was back at Hull Royal again on saturday afternoon… For another 5 day course of anti-biotics. That means he is going to be in the Hospital for his birthday but we are still going to celebrate it, and everything is still set for Saturday! Jo has also come down with a bad chest … Continue reading »

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>Ruben Update

>Sorry for my lapse in updates lately! I’ve been pretty busy. I thought you might like to know how Ruben is doing! Well, he’s been back in hospital twice since the last time I posted on here! For at least 5 Days each time. He is however currently at home and feeling fine! His walking … Continue reading »

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>Ruben Update: Back Home

>Yay! Ruben has been sent home from hospital. A day earlier than we expected to be the earliest! Yay! He’s not 100% yet, but he’s now on an oral medicine to combat whatever viruses or infections are still in his system. His immune system is almost back to normal, but not quite.. so he has … Continue reading »

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